Employment Type: Temporary Full Time up to 30 June 2027 (part time applicants encouraged to apply)
Position Classification: Admin Off Gde 3
Remuneration: 97490.44 - 100499.58 full-time equivalent base salary range (+12% super + 17.5% leave loading and salary packaging)
Hours Per Week: 38
Requisition ID: REQ673763
Location: Westmead
Applications Close: Midnight on 10 July 2026
At the Sydney Children's Hospitals Network, every role helps children and young people live their healthiest lives.
As the largest paediatric health service in Australia, we care for thousands of children each year, in hospital and at home. Our people are united by compassion, collaboration and excellence in care.
What you'll be doing
X-linked hypophosphataemic rickets (XLH) is a severe genetic bone disorder associated with life-long and multisystem complications. Standard medical treatment of oral phosphate and calcitriol leads to an incomplete healing of rickets, with persistent limb bowing, pain and physical disability. Burosumab, an FGF-23 antibody, provides the opportunity for improved clinical outcomes and quality of life.
The APEG Bone and Mineral Working Group, in collaboration with academic and industry partners, has been undertaking research into the prevalence of XLH and burden of disease amongst children, and has independently developed paediatric burosumab treatment guidelines.
The primary purpose of this position is to work with the APEG Bone and Mineral Working Group to develop and publish manuscripts reporting XLH prevalence and burden of disease and describing the burosumab protocol used in many Australian paediatric centres.
In addition to performing an extensive literature review related to XLH management, the successful candidate will work closely with members of the APEG Bone and Mineral Working Group to ensure progress in the writing of the manuscripts meets strict timelines. The position if based within the Institute of Endocrinology & Diabetes at The Children’s Hospital at Westmead. The position responsibilities will include accurate and complete data entry into the APEG Registry REDCap database, statistical analysis, write up, publication and presentation of the findings of this project.
- An excellent understanding of modern XLH management practices including the use of burosumab.
- Demonstrated experience and interest in paediatric endocrinology and children’s bone health.
- A strong track-record in medical research and publishing, preferably in paediatric endocrinology or children’s bone health.
- Excellent communication and teamwork skills
- Sound computer literacy skills including Microsoft Office applications such as Word, Excel, Outlook.
- Experience with statistical programs such as R or SPSS, and able to (or willingness to learn to) use REDCap.
Child Safe Standards:
SCHN is committed to maintaining a child-safe environment that respects and upholds the rights of children and young people, in line with NSW Health’s commitment to the Child Safe Standards. We aim to ensure that children and young people feel safe, supported, and included in their care. All current and prospective staff are expected to prioritise the safety, welfare, and well-being of children and young people, actively working to protect them from harm and abuse.
Additional Information:
SCHN is an Equal Opportunity Employer that values diversity, recognising that a diverse workforce strengthens our culture and enhances the care we provide to children, young people and their families.
Permanent NSW Health roles require Australian citizenship or permanent residency. Temporary visa holders may be considered where no suitable Australian citizen or permanent resident is identified.
NSW Health vaccination and screening requirements must be met prior to commencement.
This position requires a Working with Children Check (WWCC) issued by the Office of the Children’s Guardian.
An Eligibility List may be created for future temporary full or part time vacancies.
Need more information?
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For role related queries or questions contact Kristine Heels on [email protected]
