Employment Type: Temporary Full Time up to 30 June 2027 (part time applicants encouraged to apply)
Position Classification: Admin Off Gde 3
Remuneration: 97490.44 - 100499.58 full-time equivalent base salary range (+12% super + 17.5% leave loading and salary packaging)
Hours Per Week: 38
Requisition ID: REQ673763
Location: Westmead
Applications Close: Midnight on 10 July 2026
At the Sydney Children's Hospitals Network, every role helps children and young people live their healthiest lives.
As the largest paediatric health service in Australia, we care for thousands of children each year, in hospital and at home. Our people are united by compassion, collaboration and excellence in care.
What you'll be doing
X-linked hypophosphataemic rickets (XLH) is a severe genetic bone disorder associated with life-long and multisystem complications. Standard medical treatment of oral phosphate and calcitriol leads to an incomplete healing of rickets, with persistent limb bowing, pain and physical disability. Burosumab, an FGF-23 antibody, provides the opportunity for improved clinical outcomes and quality of life.
The APEG Bone and Mineral Working Group, in collaboration with academic and industry partners, has been undertaking research into the prevalence of XLH and burden of disease amongst children, and has independently developed paediatric burosumab treatment guidelines.
The primary purpose of this position is to work with the APEG Bone and Mineral Working Group to develop and publish manuscripts reporting XLH prevalence and burden of disease and describing the burosumab protocol used in many Australian paediatric centres.
In addition to performing an extensive literature review related to XLH management, the successful candidate will work closely with members of the APEG Bone and Mineral Working Group to ensure progress in the writing of the manuscripts meets strict timelines. The position if based within the Institute of Endocrinology & Diabetes at The Children’s Hospital at Westmead. The position responsibilities will include accurate and complete data entry into the APEG Registry REDCap database, statistical analysis, write up, publication and presentation of the findings of this project.
